There’s a sting I feel when that word is said. A jump in the blood in my veins. Because, for me, that word carries a weight. It reminds me of my children. It shows that even still, this world is not considerate of them, and what’s more, can be downright cruel. Retarded. The word used… Continue reading Retarded.
“The only other time I’ve ever had anxiety like this was before we got Casey diagnosed. We knew he hadn’t met his milestones, but I wrote it off to too many other things. My insides knew what my brain refused to deal with. It wasn’t until I went to therapy that I figured out the… Continue reading Falling apart.
When Casey was first diagnosed with autism, I set out to be the perfect special needs mom. I worked really hard to know all of the information, read all of the books, all while trying to do the regular mom stuff- cleaning, laundry, meals, etc. I burnt out hard. I flung myself into a depression… Continue reading 10 things I wish I would have done as a special needs parent from the beginning.
Yet another person in the Down syndrome community (I’m sorry, a community with people who have Down syndrome in it) has sent me an email saying that it’s wrong for me to say that Casey is “autistic” instead of saying that he has autism. Anyone outside the special needs community reading that is scratching their… Continue reading Person First Language: I can’t win.
Whether you believe it or not, I choose my words carefully on this blog. I wrote two posts about abortion and Down syndrome. The first post I wrote on in two years ago was my first post to ever go ‘viral’. It was read and shared by people who believed exactly as I do. I… Continue reading My Message Was Lost With My Words
Abby squirmed on my lap as I tried to hold her still as the doctor and her assistant worked. “Shhh, shhhhhh…almost done,” I whispered. And for the first time…ever…in Abby’s life she heard me. My daughter heard me whisper to her. She turned. She listened. She calmed. I was heartbroken when we learned that Abby’s… Continue reading Happy Hearing Day, Abby.
Abby doesn’t say much, but if she could I’m sure it would go like this. “No no no no. No. OH HELL NO. NO no no no no. Give me a hug. A HUG RIGHT NOW! No. NO. HOW DARE YOU TOUCH ME?! No. No. Food. MORE FOOD. I threw my food on the ground.… Continue reading MYTH: Children With Down Syndrome Are Always Happy.